Together, we bring hope and tangible support to families navigating rare disease — because no one should face the unimaginable alone.
Your compassion helps provide meaningful relief for those living with rare and ultra-rare diseases — one family, one act of generosity, one story at a time.
We are The Andelyn Foundation — born from the science and service of Andelyn Biosciences — and dedicated to two united purposes: supporting patients and families facing rare and ultra-rare diseases, and raising awareness so that "rare" feels a little less isolating - and more connected to understanding and support.
A foundation built on compassion, we support families living with rare and ultra-rare diseases through direct assistance, awareness, and community.
Our MissionReal support for real families — from financial relief to shared stories that build understanding and connection across the rare-disease community.
Our ImpactYour generosity strengthens the community behind every family’s journey, helping bring visibility, resources, and hope where it’s needed most.
Join The CauseOur annual golf tournament unites supporters, raises funds, and creates hope for families navigating rare and ultra-rare diseases. Join us this year and be part of the impact.
JoinEvery act of generosity — big or small — helps bring hope within reach. When you give, play, sponsor, or share, you become part of a community that believes no one should face a rare disease alone.
Donate TodayBehind every rare diagnosis is a family navigating uncertainty, urgency, and hope.
The Andelyn Foundation stands beside families living with rare and ultra-rare diseases by supporting patient-founded organizations and mobilizing community generosity into meaningful action.
Through our signature event, Fore One Purpose, our community has raised and donated $100,000 in direct support to family-led initiatives advancing research and awareness for ultra-rare conditions.
Because behind every scientific milestone is something deeply human — a family living that journey every day.
