Turning Compassion into Action

We translate generosity into meaningful impact by providing financial gifts to families facing rare and ultra-rare diseases.

How We Help Families

Each year, The Andelyn Foundation selects one deserving patient and family to receive the funds raised through our Fore One Purpose Golf Tournament. These donations are directed to the family’s own charitable foundation — empowering them to use the support where it’s needed most: for treatment, research, travel, or other vital needs along their journey.

We believe families know best how to navigate their path. Our role is to stand beside them — offering compassion, community, and tangible support that helps lighten the load.

Fore One Purpose

Fore One Purpose is more than a golf tournament — it’s a celebration of compassion and community. Each swing, sponsorship, and show of support raises funds that are directly entrusted to one selected family each year, empowering them to use the support in the way that best serves their journey.

Beyond the day itself, the event builds awareness, strengthens connection, and unites our community around a shared purpose — translating generosity into meaningful support.

While the tournament is our signature fundraising event, our commitment continues throughout the year as we elevate patient stories and encourage ongoing giving to stand beside families navigating rare disease.

Raising Awareness

We raise awareness by amplifying the stories and experiences of patients and families living with rare and ultra-rare diseases. Through storytelling and events, we bring visibility to the realities of rare disease and help others understand that “rare” isn’t as uncommon as it seems.

Our annual Fore One Purpose Golf Tournament unites supporters in a day of purpose and connection — blending golf, giving, and awareness to make an impact that lasts far beyond the course.

How You Can Help

Rare disease research and support is a long journey — one that requires all of us. With your help, The Andelyn Foundation can continue turning awareness into action and compassion into hope — for deserving families waiting to be seen, supported, and understood.

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